http://www.videocure.com/video/126857.html
All day
Staring at the ceiling
Making friends with shadows on my wall
All night
Hearing voices telling me
That I should get some sleep
Because tomorrow might be good for something
Hold on
I'm feeling like I'm headed for a
Breakdown
I don't know why
I'm not crazy, I'm just a little unwell
I know, right now you can't tell
But stay awhile and maybe then you'll see
A different side of me
I'm not crazy, I'm just a little impaired
I know, right now you don't care
But soon enough you're gonna think of me
And how I used to be
Me
Talking to myself in public
Dodging glances on the train
I know
I know they've all been talking 'bout me
I can hear them whisper
And it makes me think there must be something wrong
With me
Out of all the hours thinking
Somehow
I've lost my mind
I'm not crazy, I'm just a little unwell
I know, right now you can't tell
But stay awhile and maybe then you'll see
A different side of me
I'm not crazy, I'm just a little impaired
I know right now you don't care
But soon enough you're gonna think of me
And how I used to be
I been talking in my sleep
Pretty soon they'll come to get me
Yeah, they're taking me away
I'm not crazy, I'm just a little unwell
I know, right now you can't tell
But stay awhile and maybe then you'll see
A different side of me
I'm not crazy I'm just a little impaired
I know, right now you don't care
But soon enough you're gonna think of me
And how I used to be
Hey, how I used to be
How I used to be, yeah
Well I'm just a little unwell
How I used to be
How I used to be
Friday, April 23, 2010
Friday, March 19, 2010
Big Day For Me
I went for an hour treck to my Laywers to take care of signing off my home that I had to give up. I also went to my Doctors Office. Got all my paper work done. About ten other things seen as I was down there also. long day out at 9:00 am back at 7:00pm exhausting. But not being able to drive is killing me. I don't know about anyone else out there but I am a control freck. After breaking my back in July I have had to to learn to deal with with many of my issuse.
Tigger and Eeyore why can;t you Love me.
I hope this gets to you, Please read this. February 27, 2010 1:59:33 AM
From: Winnie-the-Pooh
Sent To: Eeyore; Tigger; Rabbit; Piglet and Owl
Christopher Robin Mama Heffalump
Dear Tigger;
I would like to start with I am sorry for any hard doing you and your sister (Eeyore) have felt or I have done to you.
I was not always the best Mother. I, in my mental recovery have apologized for this over and over. I am on a psychiatrist ordered cocktail of medications to keep my Bi-Polar / Manic Depression at bay. (Dr.Ihab OH) Which I have an hourly appointment monthly.
I have left my cell phone one and the number has been the same since both Eeyore and you were on my phone plan. I have phone or texted or emailed you, every other week with maybe a return contact 3 times in 8 months. I told you when I was awaiting the phone call which came literally 1/2 hour after you talked to me that I was being admitted to St. Mikes for my surgery. That was on Dec 3rd; check your cell phone bill.
You say I did not call you on Christmas; I did Christmas Morning from the Hospital. It went to your Machine. I left a message for Eeyore and Kanga at his Parents. What more could I do.
I don't know what more you want from you. I bend over backwards. I Love both of you so much it hurts, every day. But it is like I have no children it hurts. They hate me. How do you think it fells when the services ask you who are your family and I have no answer. Even Piglet was pissed off at his Mother for taking care of me when I was paralyzed from the ribs down, when I had no one else. Ya you had your own lives. I just don't understand how much the generations could change from mine to my children. How did I and my generation go so wrong bringing up the me generation? I made sure you and your Sister had absolutely everything you possibly wanted that I and your dad (Owl), could get the both of you. I watched the ad on the TV where the kid asks for a job at a restaurant, and the owner says should you not be out be playing hockey, the kid says that's what I need the job for. Canadian Tire Ad.
I just want to know how to get on with my life and to know what I can expect from my children. Is there hope for counselling, or is that too far, or is it just through the bitch to the side and pretend she is dead, and I can have a mock funeral for my mind, and burn your baby cloths and get some closer.
A wise person did say to me I should not expect anything from anybody else but myself, Then it`s only yourself you can get upset with.
I will always Love the both of you I just can`t live like this.
From: Winnie-the-Pooh
Sent To: Eeyore; Tigger; Rabbit; Piglet and Owl
Christopher Robin Mama Heffalump
Dear Tigger;
I would like to start with I am sorry for any hard doing you and your sister (Eeyore) have felt or I have done to you.
I was not always the best Mother. I, in my mental recovery have apologized for this over and over. I am on a psychiatrist ordered cocktail of medications to keep my Bi-Polar / Manic Depression at bay. (Dr.Ihab OH) Which I have an hourly appointment monthly.
I have left my cell phone one and the number has been the same since both Eeyore and you were on my phone plan. I have phone or texted or emailed you, every other week with maybe a return contact 3 times in 8 months. I told you when I was awaiting the phone call which came literally 1/2 hour after you talked to me that I was being admitted to St. Mikes for my surgery. That was on Dec 3rd; check your cell phone bill.
You say I did not call you on Christmas; I did Christmas Morning from the Hospital. It went to your Machine. I left a message for Eeyore and Kanga at his Parents. What more could I do.
I don't know what more you want from you. I bend over backwards. I Love both of you so much it hurts, every day. But it is like I have no children it hurts. They hate me. How do you think it fells when the services ask you who are your family and I have no answer. Even Piglet was pissed off at his Mother for taking care of me when I was paralyzed from the ribs down, when I had no one else. Ya you had your own lives. I just don't understand how much the generations could change from mine to my children. How did I and my generation go so wrong bringing up the me generation? I made sure you and your Sister had absolutely everything you possibly wanted that I and your dad (Owl), could get the both of you. I watched the ad on the TV where the kid asks for a job at a restaurant, and the owner says should you not be out be playing hockey, the kid says that's what I need the job for. Canadian Tire Ad.
I just want to know how to get on with my life and to know what I can expect from my children. Is there hope for counselling, or is that too far, or is it just through the bitch to the side and pretend she is dead, and I can have a mock funeral for my mind, and burn your baby cloths and get some closer.
A wise person did say to me I should not expect anything from anybody else but myself, Then it`s only yourself you can get upset with.
I will always Love the both of you I just can`t live like this.
Monday, March 8, 2010
My nephew Frank Peter Benczenleitner was the first child, in all of America to be diagnosed with what they called it back in 1970, as Pancreas Insufficiency and Neutropenia. Today they call it Shwachman’s-Diamond Syndrome. They had to send to Switzerland for Dr. Shwachman. Frank spent more than ½ of his life in the Sick Children’s Hospital in Toronto, Ontario, Canada. Right up until before he was killed in a car accident. He was 21. From the findings after his last visit, we received a letter addressed to him. They had found a gene for Cystic Fibrosis with what he called his ginny pig work/help. All this and when he was born the doctors did not know what was wrong; they just knew he was unable to digest enzymes with his pancreas. He never made too much of a fuss. He was resistant so stoic.
In hind sight it was also believed that my Aunt Diane A.N. had every symptom of this syndrome although we could not confirm it due to her death.
http://www.cafamily.org.uk/medicalinformation/conditions/azlistings/s24_6.html
Shwachman-Diamond syndrome: Shwachman syndrome
Shwachman-Diamond syndrome is a rare, multi-system disorder in which affected individuals have a defective pancreas that fails to secrete digestive enzymes, poor growth and a predisposition to recurrent infection and blood disorders.
Shwachman-Diamond syndrome
What are the symptoms?
The digestive defects results in diarrhea and fatty stools with fat soluble vitamin and mineral deficiency. Poor growth is an integral part of the condition in about fifty per cent of individuals. Specific skeletal defects are present including metaphyseal dysostosis and a thoracic dystrophy. Dental problems are common and can be severe. Mild to moderate learning difficulties are present as well as behavioral and feeding problems in up to fifty per cent of affected children.
Expression of the disorder is variable and ranges from mild pancreatic insufficiency to a serious life-threatening disorder. Some spontaneous improvement in symptoms may occur, usually after the age of eight years.
Recurrent infection, which may be life threatening, is due to both minor immunodeficiency and neutrophil defects. In about sixty per cent of cases, neutropenia is present and this may be cyclical. In severe cases more serious haematological disorder may occur with aplastic anaemia (anemia - US) myelodysplasia and possibly acute myeloid leukemia. Rarely, hepatic fibrosis and ichthyotic skin lesions may occur.
Medical text written December 1993 by Professor P Milla. Last updated October 2005 by Professor P Milla, Professor of Pediatric Gastroenterology and Dr N Shah, Consultant Pediatric Gastroenterologist, Great Ormond Street Hospital, London, UK.
About the Directory
How is it treated?
Treatment is by pancreatic enzyme replacement and multi-vitamin supplements with prophylactic antibiotics to prevent infection and aggressive treatment of infections when they occur. Haematological and immunological defects may require appropriate specific treatment. Psychological intervention and feeding interventions may also be needed.
A register of patients is maintained in the Department of Gastroenterology, Great Ormond Street Hospital for Children, London WC1N 3JH
Inheritance patterns and prenatal diagnosis
Inheritance patterns
Autosomal recessive but may occur sporadically. The gene affected is the SBDS gene found on chromosome 7. five per cent of all known cases have a common compound heterozygote mutation. Genetic testing following careful clinical evaluation is available at the North West Regional Genetics Reference Laboratory, St. Mary's Hospital, Hathersage Road, Manchester M13 0JH, Tel: 0161 276 6122 / 6605, contact Dr Martin Schwarz, Consultant Clinical Molecular Geneticist.
Prenatal diagnosis
Available for those with confirmed mutations in the SBDS gene.
Schwachman-Diamond support
6 The Link
Rye
East Sussex
TN31 7BT
Tel: 01797 223675
e-mail: mail@sdsuk.org
Web: http://www.sdsuk.org
The Group is a National Registered Charity No. 1081122, established in 2000. It offers support for affected persons and their families and promotes research initiatives. It aims to raise awareness of Shwachman syndrome among the medical profession, support agencies and the public. It offers an information booklet and bi-annual family conferences. The group has a medical advisory board.
Group details last updated January 2010.
In hind sight it was also believed that my Aunt Diane A.N. had every symptom of this syndrome although we could not confirm it due to her death.
http://www.cafamily.org.uk/medicalinformation/conditions/azlistings/s24_6.html
Shwachman-Diamond syndrome: Shwachman syndrome
Shwachman-Diamond syndrome is a rare, multi-system disorder in which affected individuals have a defective pancreas that fails to secrete digestive enzymes, poor growth and a predisposition to recurrent infection and blood disorders.
Shwachman-Diamond syndrome
What are the symptoms?
The digestive defects results in diarrhea and fatty stools with fat soluble vitamin and mineral deficiency. Poor growth is an integral part of the condition in about fifty per cent of individuals. Specific skeletal defects are present including metaphyseal dysostosis and a thoracic dystrophy. Dental problems are common and can be severe. Mild to moderate learning difficulties are present as well as behavioral and feeding problems in up to fifty per cent of affected children.
Expression of the disorder is variable and ranges from mild pancreatic insufficiency to a serious life-threatening disorder. Some spontaneous improvement in symptoms may occur, usually after the age of eight years.
Recurrent infection, which may be life threatening, is due to both minor immunodeficiency and neutrophil defects. In about sixty per cent of cases, neutropenia is present and this may be cyclical. In severe cases more serious haematological disorder may occur with aplastic anaemia (anemia - US) myelodysplasia and possibly acute myeloid leukemia. Rarely, hepatic fibrosis and ichthyotic skin lesions may occur.
Medical text written December 1993 by Professor P Milla. Last updated October 2005 by Professor P Milla, Professor of Pediatric Gastroenterology and Dr N Shah, Consultant Pediatric Gastroenterologist, Great Ormond Street Hospital, London, UK.
About the Directory
How is it treated?
Treatment is by pancreatic enzyme replacement and multi-vitamin supplements with prophylactic antibiotics to prevent infection and aggressive treatment of infections when they occur. Haematological and immunological defects may require appropriate specific treatment. Psychological intervention and feeding interventions may also be needed.
A register of patients is maintained in the Department of Gastroenterology, Great Ormond Street Hospital for Children, London WC1N 3JH
Inheritance patterns and prenatal diagnosis
Inheritance patterns
Autosomal recessive but may occur sporadically. The gene affected is the SBDS gene found on chromosome 7. five per cent of all known cases have a common compound heterozygote mutation. Genetic testing following careful clinical evaluation is available at the North West Regional Genetics Reference Laboratory, St. Mary's Hospital, Hathersage Road, Manchester M13 0JH, Tel: 0161 276 6122 / 6605, contact Dr Martin Schwarz, Consultant Clinical Molecular Geneticist.
Prenatal diagnosis
Available for those with confirmed mutations in the SBDS gene.
Schwachman-Diamond support
6 The Link
Rye
East Sussex
TN31 7BT
Tel: 01797 223675
e-mail: mail@sdsuk.org
Web: http://www.sdsuk.org
The Group is a National Registered Charity No. 1081122, established in 2000. It offers support for affected persons and their families and promotes research initiatives. It aims to raise awareness of Shwachman syndrome among the medical profession, support agencies and the public. It offers an information booklet and bi-annual family conferences. The group has a medical advisory board.
Group details last updated January 2010.
Delusions of grandeur Visions of splendour
This is a song that in 77 when I 1st heard it, I just knew it meant something genuinely to me, it was just so inspirational. I used to put on my big old clunky head phones, and crank up the song, I actually wore the vinyl down and had to buy two more albums to get me through my teens. I had not even heard of insane, let alone what a manic depressive was, until this song. In my family we were just used to total utter confusion, every one we knew was like that. We thought this was normal We did not even call it utter confusion, We had a big family and were always around many family members, So I could not understand why people would be mean and cruel to a person who was just helping others. Yes now I understand they / we are called (care takers) for anyone else but themselves / ourselves. I now understand.
Thank you Geddy Lee, for these song lyrics, and this song.
A modest man from Mandrake Travelled rich to the city He had a need to discover A use for his newly found wealth Because he was human Because he had goodness Because he was moral They called him insane Delusions of grandeur Visions of splendour A manic depressive He walks in the rain Eyes wide open Heart undefended Innocence untarnished... Cinderella Man Doing what you can They can't understand What it means Cinderella Man Hang on to your plans Try as they might They cannot steal your dreams In the betrayal of his love he awakened To face a world of cold reality And a look in the eyes of the hungry Awakened him to what he could do He held up his riches To challenge the hungry Purposeful motion For one so insane They tried to fight him Just couldn't beat him This manic depressive Who walks in the rain
You can Find this video at. http://www.youtube.com/watch?v=1TohExbZsUs
Or whatever music shareware you use
Rush / A Farewell To Kings/ Cinderella Man
Thank you Geddy Lee, for these song lyrics, and this song.
A modest man from Mandrake Travelled rich to the city He had a need to discover A use for his newly found wealth Because he was human Because he had goodness Because he was moral They called him insane Delusions of grandeur Visions of splendour A manic depressive He walks in the rain Eyes wide open Heart undefended Innocence untarnished... Cinderella Man Doing what you can They can't understand What it means Cinderella Man Hang on to your plans Try as they might They cannot steal your dreams In the betrayal of his love he awakened To face a world of cold reality And a look in the eyes of the hungry Awakened him to what he could do He held up his riches To challenge the hungry Purposeful motion For one so insane They tried to fight him Just couldn't beat him This manic depressive Who walks in the rain
You can Find this video at. http://www.youtube.com/watch?v=1TohExbZsUs
Or whatever music shareware you use
Rush / A Farewell To Kings/ Cinderella Man
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